Destroying Sickle Cell Disease

Keith, Jr., affectionately known as ‘KJ’, was diagnosed with sickle cell disease at birth. At 4-years old, KJ began having monthly blood transfusions to minimize his risk of strokes and unimaginable pain. Fast- forward to December 5, 2013, KJ tapped into his inner superhero powers and began destroying his sickle cell disease through a bone marrow transplant. Sickle cell disease has been around for 100 years and our goal is to fight until it's destroyed! In the words of KJ, "sickle cell sucks!"

Saturday, December 14, 2013

KJ is loosing his hair

It's been 9 days since KJ's bone marrow transplant. Most days KJ is full of energy and smiling. Doctors are still amazed of how well he's doing despite undergoing chemo and transplant. However, I'm struggling to hold back the tears as I watch the side effects of chemo slowly change his physical appearance, the darkening of his skin, especially around his neck and under his eyes. This morning hair is everywhere! All over the pillows and sheets. It's happening the one thing he was most afraid of, loosing his hair. But I will keep my cool in front of him. Tonight when he's sleeping I will cry.

This too shall pass...