Destroying Sickle Cell Disease

Keith, Jr., affectionately known as ‘KJ’, was diagnosed with sickle cell disease at birth. At 4-years old, KJ began having monthly blood transfusions to minimize his risk of strokes and unimaginable pain. Fast- forward to December 5, 2013, KJ tapped into his inner superhero powers and began destroying his sickle cell disease through a bone marrow transplant. Sickle cell disease has been around for 100 years and our goal is to fight until it's destroyed! In the words of KJ, "sickle cell sucks!"

Showing posts with label Overwhelmed.. 1st Day home. Show all posts

Tuesday, January 7, 2014

Overwhelmed

Happy to have my baby home!! But I sure miss the nursing staff from the hospital.. With KJ taking 11 pills in the morning, 6 pills at night, blood pressure checks twice a day, and trying to figure out how to run his IV machine for an hour has nurse daddy and nurse mommy feeling a little overwhelmed!!!

My hubby and KJ fraustrated because IV machine (GemStar) is not working..UGGH